IRSF Chair Letter to Senator Casey

This letter from Kathryn Kissam, IRSF Chair, was sent to Senator Casey (D-PA) and Senator Burr (R-NC) in gratitude for sending a ‘Dear Colleague’ letter to every member of the US Senate requesting that NIH funding not be reduced in the next fiscal year.

Dear Senator Casey:  

On behalf of the International Rett Syndrome Foundation (IRSF) I thank you for circulating a letter to your Senate colleagues supporting robust funding for the National Institutes of Health (NIH) in FY 2012. As Chair of IRSF, an organization representing an estimated 15,000 girls and women affected by Rett syndrome, an autism like developmental disorder I applaud your commitment to medical progress and our nation's economic future.   NIH provides hope to our girls, and with NIH supported research paving the way for a clinical trial underway, our families and their children are an NIH success story.  By using NIH funds effectively and with dedicated researchers and medical innovation in the academic sector, Rett syndrome families can reasonably hope for potentially lifesaving medical research at hospitals, universities and private research institutions that may benefit all neurological disorders in the near future.    Thank you again on behalf of everyone affected by Rett syndrome for supporting NIH and its critical mission of advancing medical research.  

Sincerely,
Kathryn Schanen Kissam
Chair International Rett Syndrome Foundation.


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