Today is a critical time for you to take action on behalf of funding for Rett syndrome and related disorder research and awareness! In the coming weeks, members of the House and Senate will finalize the FY2009 Labor–HHS-Education Appropriations bill. In that bill, IRSF has requested critical funding from the Center of Disease Control and Prevention to support education, awareness and outreach for patients, health professionals and the public regarding Rett syndrome (RTT). This funding will also help us establish the foundation required to accelerate treatments of this debilitating brain disorder that is often misdiagnosed.
We need you! It is critical that we show widespread advocacy across the nation supporting this request.
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